After this interview, Mr. Banu Deodat passed away on January 29, 2023.
Ms Banu Deodat arrived in the UK from India in the 1960s and worked for the National Health Service as a liver transplant nurse for the rest of her career. Now 86, she has had night treatment discontinued following a decision by the North Central London Clinical Commissioning Group (CCG).
Alex Thomson interviews Mrs Deodat's son Sean about the problems he continues to have in receiving his mother's NHS-funded care. The mother has multiple health problems, as acknowledged by the NHS in a maternal needs assessment, and is bedridden. And incontinence.
Even the carers sent to attend to Ms Deodat during the day, and the NHS staff who respond to emergency calls at night, were shocked when the local clinical commissioning group refused her night care. I am receiving it.
The UK Column has seen the correspondence sent by the Clinical Commissioning Group. It is stated as follows:
You are not currently eligible for NHS Continuing Care.
and:
The nature of Mrs. Banu Deodat does not indicate or indicate a need for primary medical care.
Listen to this interview with her son Sean and you'll have a different perspective on the issue.
Remedy
Shortly after publishing this interview, UK Column received the following authoritative advice from a senior nurse for people in a similar position to the Deodat family:
I saw an interview with you about Sean's mother's condition and the troubles with North Central London CCG caused by the NHS CHC refusal. (continuous health management) care package.
Even though I have personally witnessed similar or even worse situations with my patients over the past few years, this incident still left me angry and frustrated.
I am angry because I am aware of the inner workings of some CCGs and their tactics to gradually remove people who are legally entitled to funding from their databases.
And patients and their families are often ill-informed about CHC issues and unable to take the right action, ultimately challenging these mistakes and, ultimately, doing what is ethically necessary. I am frustrated because I am at the mercy of a law firm that charges far more than I think it should. Illegal negative financing decisions.
There are at least three things that viewers should understand.
First, the challenges in CHC funding decisions are as follows. Not a legal process. To reduce the strain on my family, I have always encouraged my family to do things themselves as much as possible. The family chooses the level of my involvement in providing guidance and assisting with writing the appeal.
The potential whole process would therefore be to appeal against the first negative decision, attend a local resolution conference, challenge the latter decision, appeal to the competent NHS England (NHSE) department and then , to prepare and attend an Independent Review Panel (IRP). NHSE itself met and appealed the latter to NHSE. Ombudsman for Parliament and Health Services— and in extreme cases, until you apply to the High Court for judicial review — which costs should not exceed £2,000 to £2,500. Some companies may charge 2 to 10 times this amount, and no-win-no-fee companies may charge 10% to 25% of the final amount won. My first client may have been charged around £10,000.
Second, the important thing is that stick to the complete process Until the CCG gave up the fight. It can happen at any stage. Their strategy is simple. Bet that the family will stop the fight. None of the cases I tracked were actually lost. What happened was that the client was exhausted from the fight. Despite the job offer pro bonothey simply gave up. The CCG is well aware of this and continues to refuse appeals. NHSE is pursuing a similar strategy, making it increasingly difficult for NHSE's Independent Review Panel (IRP) to 'win'. Most people are not going to bother going to the Ombudsman, much less attempting a preliminary process for judicial review.
I think the following questions are interesting. Is it any wonder that there has been no judicial review of NHS CHC funding cases for over 15 years? Not a single one of the hundreds of thousands of people who have been illegally refused funding? I don't think so. tried Judicial review. The truth must be so The CCG will accept defeat once it receives an advance action plan from the patient's family..
The CCG's expensive legal advisers know that established case law will be devastating to the CCG. The CCG lost the case, which would lead to new legal action against the NHS. Therefore, the audience must understand the following:hold on until you win” is the password. They can rest assured that the Ombudsman stage is often sufficient, as there is also clear precedent for a typical CCG funding refusal decision.
Thirdly, the CCG regularly sends out task forces of nurses on short-term contracts, particularly in care homes, who are paid between £300 and £400 a day, to screen those currently receiving CHC funding. Please be aware that The only intention is to remove them from the books at all costs.: actuarial decisions (incidentally, I receive several emails each week from nursing organizations offering these types of short/medium term CHC assessment nurse contracts). I have also experienced several such lawsuits and successfully appealed them. This often happens in the following cases: People don't die as quickly as the CCG predicted.
Unfortunately, on several occasions these contract nurses show no empathy, are encouraged by their placement to write reports aiming for a negative decision, and frame family expectations towards withdrawal of funding. It's sad to hear that people seem to be encouraging this. Conveniently, these nurses come and go. In an extreme case, it was discovered that one CHC senior nurse assessor's registration with the Nursing and Midwifery Council had expired. Interestingly, when we reported this, the CCG immediately provided funding.
Viewers must: If you hear from your relative's care home manager that a CCG is visiting to investigate, be especially alert and preparedthat is, if they have the decency to announce a visit.
In summary, tell your audience to learn about your system and get honest, ethically priced support to hold your hand for as long as you need it every step of the way.
Please tell me to keep going.
Tell them to be careful.
